Discussion about this post

User's avatar
Thelma Robinson's avatar

Thanks for sharing your story. I haven't been in exactly your situation. But I can certainly relate to your experience with your Mum. You want to feel supported and have some help but real understanding of the problems you face is just not there. I think of you as someone who thinks outside the box, so I'm sure you will do that and find your own unique kind of solution. I know you are a great reader. I always recommend an amazing book to anyone looking after an older person. It is Contented Dementia by psychologist Oliver James. It's basically a different way of thinking about dementia, and has some very simple and practical ideas. It might help.

Expand full comment
Julie Mackinder's avatar

I'm only now reading this post Gina and I'm so sorry you are facing this with your Mum. MCI was Stewart's first diagnosis too and I was furious. It felt like a dismissal of everything we were experiencing and 'Mild' is a ridiculous definition. I contacted the memory team just over a year after Stewart's diagnosis as he was deteriorating and they did more tests and gave us his current diagnosis. I hope that your Mum doesn't get any worse but I do know how difficult life is for all of you now. I felt abandoned too but found support online on Facebook with an MCI group. If you need someone to talk to message me anytime. It's a massive learning curve and you have to do most of that yourself. Laughter is a great tool to help you keep going but do try and look after yourself. Keep some time for yourself, it's important. xx

Expand full comment
18 more comments...

No posts